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Parent Heart Watch
Parent Heart Watch (PHW) is a state-by-state network of parents dedicated to reducing the often disastrous effects of Sudden Cardiac Arrest (SCA) in children. Parent Heart Watch enables information sharing, support networks, and the formulation of nationwide programs that meet our mission and vision objectives.

PHW calls on the talents and passion of parents whose children have suffered from SCA. Its mission has been brought to life through the following types of programs:
  • National Leadership Forum to build a national network, "one voice" in the fight against SCA
  • AED Placement & Education in schools, sports venues and other public places where youth congregate
  • Cardiac Screenings for young people nationwide
  • Advocacy Programs
www.parentheartwatch.org
HeartScreen America, Inc.
"HeartScreen America has removed the barriers of access and high cost of cardiovascular screening, enabling individuals to take unprecedented control of their cardiac health. It is our mission to screen hearts and save lives — providing peace of mind by knowing that everything has been done to minimize the risk of sudden unexpected death."

- Bert R. Vining
President, COO, HeartScreen America

www.heartscreenamerica.com
The Hypertrophic Cardiomyopathy Association
"Hypertrophic Cardiomyopathy: For Patients, Their Families and Interested Physicians" by Barry J. Maron M.D. with Lisa Salberg is included with membership to HCMA. Please see website membership information for more details.

www.4hcm.org
(973) 983-7429
support@4hcm.org (email)

Johns Hopkins ARVD Program
www.arvd.org
(410) 502-7161

The Nicholas Ryan Over Foundation
The Nicholas Ryan Over Foundation has donated an Automatic External Defibrillator (AED) to at least 30 South Central Pennsylvania schools thus far, as well as assisted other public facilities with their purchase of an AED. They have instituted the South Central PA Heart-Safe Public Access Defibrillation (PAD) Program and provide instruction and training regarding AED use. They can help you set up a Heart-Safe program in your school or public facility.

If your school or public facility does not have the resources to obtain an AED or wants to purchase one at the lowest possible price, they can help you. They do not profit from the sale of any AEDs.

www.ourbelovednick.com

Cardiac Arrhythmias Research and Education Foundation (CARE Foundation)
www.longqt.org
1-800-404-9500

Childrens Hospital Boston
www.childrenshospital.org

Mayo Clinic
www.mayoclinic.org

Kyle Derek Edmunds
http://hometown.aol.com/wingedseraph16/

Genetic Testing
For information on genetic testing for Long QT Syndrome and Brugada Syndrome:

www.pgxhealth.com/genetictests/familion

Cardiac Science Corporation
www.cardiacscience.com

South Central EMS
www.scems.net

Cardiac Arrhythmia Syndromes Foundation (CASF)
www.SafeBeat.org

A Foundation for the Education and Advocacy of Pro-Active Prevention of Sudden Cardiac Arrest of the Adolescent Athlete and Young American Population thru Heart Screening, Including an Electrocardiogram
Sudden Arrhythmia Death Syndromes Foundation (SADS)
The SADS Foundation is a non-profit organization committed to supporting families and individuals who may be genetically predisposed to sudden cardiac death due to cardiac arrhythmias through education, research and advocacy. Information is provided with the hope that informing physicians, other health care providers, and the public will encourage early and correct diagnosis and proper therapy, resulting in the reduction and ultimately elimination of cardiac arrest and sudden death from inherited LQTS.

When a family member dies suddenly before the age of 40, please read this important information:
http://sads.org/Materials/Child%20dies1.html

www.sads.org
1-800-786-7723

Dental Work
If any signs or symptoms of a heart problem exist, including heart murmur, it is very important to be evaluated by a (pediatric) cardiologist before allowing any dental work to be performed. For more information, please refer to the following website:

http://home.cc.umanitoba.ca/~soninr/DentalWork.pdf

Drug Precautions
Please review this website if you or a loved one either has, or suspects, a heart problem. Many over-the-counter and prescription medications must be avoided.

www.qtdrugs.org

Vanderbilt University Medical Center
www.vanderbiltchildrens.com/

American Heart Association
www.americanheart.org

Heart Rhythm Society
For easy to get cardiac arrhythmia information at the web-based Patient and Public Information Center on:
  • The Normal Heart
  • Risk Factors and Prevention
  • Signs and Symptoms
  • Heart Tests
  • Heart Diseases and Disorders
  • Treatments
  • Substances Causing Arrhythmias
www.hrsonline.org

Sports City
www.sportscityhbg.com

(717) 657-9626
4141 Linglestown Road
Harrisburg, PA 17112
  • Indoor sports
  • Soccer, Lacrosse, Basketball, Field Hockey, more
  • Indoor Leagues
  • Tournaments
  • Clinics
  • Field & Court Rentals
  • Birthday & Team Parties

Sudden Cardiac Arrest Foundation
www.sca-aware.org

The contents of this website are for informational purposes only and should not be substituted for professional advice.
Always consult your physician with any questions and concerns.


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